Critical Medicare Benefit in Jeopardy
Please help us protect people with neuromuscular diseases from the potentially harmful impact of the recently released House Tri-Committee healthcare reform proposal. The package eliminates the first month purchase option for all power wheelchairs.

UPDATE - SMA Treatment Acceleration Act of 2009
Thanks to our grassroots efforts, 17 Members of the House of Representatives and four Senators have now signed on to the SMA legislation.

'Home Wrecker' Extraordinaire: Iowan with ALS receives governor’s award for volunteer work tearing down flood-damaged houses
Six or seven days a week, eight or nine hours a day, Steve Thomas is a home wrecker. Far from being a destroyer, Thomas, 62, of Cedar Rapids, Iowa, is part of an important restoration process that he calls "gutting and mucking."

Frustration and Canceled Vacations: Update on air travel regs for respiratory equipment
A May 13 ruling from the U.S. Department of Transportation (DOT) is proving a headache for manufacturers of respiratory equipment and a frustration for commercial air travelers who rely on ventilators, respirators, positive airway pressure devices such as CPAP and BiPAP, or personal oxygen concentrators.

Longtime MDA Telethon Anchor Ed McMahon Dies
Ed McMahon, one of America's best known television personalities and longtime anchor of the Muscular Dystrophy Association’s Jerry Lewis Telethon, died today at age 86 in Los Angeles.

MDA Cancels Remainder of Nationwide Summer Camp Program to Protect Children From Swine Flu
Due to overriding concern for the health and safety of Jerry’s Kids, the Muscular Dystrophy Association (MDA) announced today that it is immediately canceling the remainder of its annual summer camp program because of the H1N1 virus.